Potrebe staršev novorojenčkov, ki potrebujejo bolnišnično zdravljenje

Primerjava perspektive staršev in zdravstvenega osebja

Avtorji

  • Živa Manja Petrovec Univerza v Ljubljani, Filozofska fakulteta
  • Urška Fekonja Univerza v Ljubljani, Filozofska fakulteta
  • Darja Paro Panjan Univerzitetni klinični center Ljubljana, Pediatrična klinika
  • Jana Kodrič Univerzitetni klinični center Ljubljana, Pediatrična klinika

DOI:

https://doi.org/10.20419/2025.34.622

Ključne besede:

potrebe, starši, novorojenčki, neonatalna intenzivna nega, zdravstveno osebje

Povzetek

Zdravljenje novorojenčka v bolnišnici je za starše stresna izkušnja, ki se odraža v njihovem doživljanju raznolikih potreb. Namen raziskave je bil proučiti potrebe staršev novorojenčkov, ki potrebujejo bolnišnično zdravljenje, ter jih primerjati s potrebami staršev, kot jih ocenjujejo zdravstveni delavci. V vzorec smo vključili 189 staršev, katerih novorojenček je bil zdravljen na Kliničnem oddelku za neonatologijo, ter 33 zdravstvenih delavcev, zaposlenih na tem oddelku. Za raziskavo smo prilagodili in uporabili Vprašalnik potreb staršev novorojenčkov, zdravljenih na neonatalnem oddelku (angl. NICU Family Needs Inventory; Ward, 1999), ki so ga izpolnili starši in zdravstveno osebje. Rezultati so pokazali, da so starši kot najpomembnejši ocenili potrebi po bližini in pomiritvi, sledi potreba po informacijah, nato potreba po opori in nazadnje potreba po udobju. Zdravstveno osebje je potrebe staršev ocenilo v podobnem vrstnem redu; kot najpomembnejši je ocenilo potrebi po pomiritvi in bližini, sledijo potrebe po informacijah, opori in udobju. Nadalje smo ugotovili, da so starši v primerjavi z zdravstvenim osebjem ocenili potrebe po bližini, pomiritvi in informacijah kot razmeroma pomembnejše. Starši, ki so bivali v bolnišnici, so izražali višji potrebi po opori in informacijah; starši, katerih novorojenček se je zdravil dlje časa, so izražali nižjo potrebo po bližini; starši z višjo izobrazbo pa so izražali nižjo potrebo po informacijah. Na podlagi ugotovitev raziskave poudarjamo ključne potrebe staršev novorojenčkov, zdravljenih v bolnišnici, in opozarjamo na pomen razumevanja teh potreb pri zdravstvenem osebju, kar je bistveno za izboljšanje kakovosti oskrbe novorojenčkov ter povečanje zadovoljstva in psihičnega blagostanja staršev.

Prenosi

Podatki o prenosih še niso na voljo.

Literatura

Al Maghaireh, D. F., Abdullah, K. L., Chan, C. M., Piaw, C. Y. in Al Kawafha, M. M. (2016). Systematic review of qualitative studies exploring parental experiences in the neonatal intensive care unit. Journal of clinical nursing, 25(19–20), 2745–2756. https://doi.org/10.1111/jocn.13259

Amorim, M., Alves, E., Kelly-Irving, M. in Silva, S. (2019). Needs of parents of very preterm infants in Neonatal Intensive Care Units: A mixed methods study. Intensive and Critical Care Nursing, 54, 88–95. https://doi.org/10.1016/j.iccn.2019.05.003

Bialoskurski, M. M., Cox, C. L. in Wiggins, R. D. (2002). The relationship between maternal needs and priorities in a neonatal intensive care environment. Journal of Advanced Nursing, 37(1), 62–69. https://doi.org/10.1046/j.1365-2648.2002.02057.x

Bry, A. in Wigert, H. (2019). Psychosocial support for parents of extremely preterm infants in neonatal intensive care: A qualitative interview study. BMC Psychology, 7, članek 76. https://doi.org/10.1186/s40359-019-0354-4

Byrne, B. M. (2010). Structural equation modeling with AMOS: Basic concepts, applications, and programming (2. izd.). Routledge.

Cooper, L. G., Gooding, J. S., Gallagher, J., Sternesky, L., Ledsky, R. in Berns, S. D. (2007). Impact of a family-centered care initiative on NICU care, staff and families. Journal of Perinatology, 27(2), 32–37. https://doi.org/10.1038/sj.jp.7211840

Cox, C. L. in Bialoskurski, M. (2001). Neonatal intensive care: Communication and attachment. British Journal of Nursing, 10(10), 668–676. https://doi.org/10.12968/bjon.2001.10.10.9987

Fenwick, J., Barclay, L. in Schmied, V. (2001). Struggling to mother: A consequence of inhibitive nursing interactions in the neonatal nursery. The Journal of Perinatal & Neonatal Nursing, 15(2), 49–64. https://doi.org/10.1097/00005237-200109000-00005

Gallagher, K., Marlow, N., Edgley, A. in Porock, D. (2011). The attitudes of neonatal nurses towards extremely preterm infants. Journal of Advanced Nursing, 68(8), 1768–1779. https://doi.org/10.1111/j.1365-2648.2011.05865.x

Gavey, J. (2007). Parental perceptions of neonatal care. Journal of Neonatal Nursing, 13(5), 199–206. https://doi. org/10.1016/j.jnn.2007.06.001

Govindaswamy, P., Laing, S., Waters, D., Walker, K., Spence, K. in Badawi, N. (2019). Needs of parents in a surgical neonatal intensive care unit. Journal of Paediatrics and Child Health, 55(5), 567–573. https://doi.org/10.1111/jpc.14249

Guerra, J. C. in Ruiz de Cárdenas, C. H. (2008). Interpretación del cuidado de enfermería neonatal desde las experiencias y vivencias de los padres [Interpreting neonatal nursing care from the parents’ experiences viewpoint]. Avances en Enfermería, 26(2), 80–90.

Hall, E. O. (2005). Being in an alien world: Danish parents‘ lived experiences when a newborn or small child is critically ill. Scandinavian Journal of Caring Sciences, 19(3), 179– 185. https://doi.org/10.1111/j.1471-6712.2005.00352.x

Heidari, H., Hasanpour, M. in Fooladi, M. (2013). The experiences of parents with infants in Neonatal Intensive Care Unit. Iranian Journal of Nursing and Midwifery Research, 18(3), 208–213.

Heinemann, A. B., Hellström-Westas, L. in Hedberg Nyqvist, K. (2013). Factors affecting parents‘ presence with their extremely preterm infants in a neonatal intensive care room. Acta Paediatrica, 102(7), 695–702. https://doi.org/10.1111/apa.12267

Hu, L. in Bentler, P. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling: A Multidisciplinary Journal, 6(1), 1–55. https://doi.org/10.1080/10705519909540118

Jackson, K., Ternestedt, B. M. in Schollin, J. (2003). From alienation to familiarity: Experiences of mothers and fathers of preterm infants. Journal of Advanced Nursing, 43(2), 120–129. https://doi.org/10.1046/j.1365-2648.2003.02686.x

Kampouroglou, G., Velonaki, V.-S., Pavlopoulou, I., Drakou, E., Kosmopoulos, M., Kouvas, N., Tsagkaris, S., Fildissis, G., Nikas, K. in Tsoumakas, K. (2020). Parental anxiety in pediatric surgery consultations: The role of health literacy and need for information. Journal of Pediatric Surgery, 55(4), 590–596. https://doi.org/10.1016/j. jpedsurg.2019.07.016

Kubb, C. in Foran, H. M. (2020). Online health information seeking by parents for their children: Systematic review and agenda for further research. Journal of Medical Internet Research, 22, 1–21.

Ladani, M. T., Abdeyazdan, Z., Sadeghnia, A., Hajiheidari, M. in Hasanzadeh, A. (2017). Comparison of nurses and parents‘ viewpoints regarding the needs of parents of premature infants in neonatal intensive care units. Iranian Journal of Nursing and Midwifery Research, 22(5), 367–371. https://doi.org/10.4103/1735-9066.215672

Lasiuk, G. C., Comeau, T. in Newburn-Cook, C. (2013). Unexpected: An interpretive description of parental traumas‘ associated with preterm birth. BMC Pregnancy and Childbirth, 13(1), 1–10. https://doi.org/10.1186/1471-2393-13-S1-S13

Latour, J. M., Hazelzet, J. A., Duivenvoorden, H. J. in Van Goudoever, J. B. (2010). Perceptions of parents, nurses, and physicians on neonatal intensive care practices. The Journal of Pediatrics, 157(2), 215–220. https://doi.org/10.1016/j.jpeds.2010.02.009

Mok, E. in Leung, S. F. (2006). Nurses as providers of support for mothers of premature infants. Journal of Clinical Nursing, 15(6), 726–734. https://doi.org/10.0.4.87/j.1365- 2702.2006.01359.x

Mousavi, S. S., Chaman, R., Khosravi, A., Mohagheghi, P., Mousavi, S. A. in Keramat, A. (2016). The needs of parents of preterm infants in Iran and a comparison with those in other countries: A systematic review and meta-analysis. Iranian Journal of Pediatrics, 26(5), 1–18. https://doi.org/10.1111/j.1651-2227.2011.02440.x

Mundy, C. A. (2010). Assessment of family needs in neonatal intensive care units. American Journal of Critical Care, 19(2), 156–163. https://doi.org/10.4037/ajcc2010130

Obeidat, H. M., Bond, E. A. in Callister, L. C. (2009). The parental experience of having an infant in the newborn intensive care unit. The Journal of Perinatal Education, 18(3), 23–29. https://doi.org/10.1624/105812409X461199

Poole, E. I., Ryan, M., Walls, M., Slumkoski, C., Curran, J. A., Seabrook, J. A. in Foster, J. R. (2024). “I want to be there. I have to be there.”: Parents’ perceived barriers and facilitators to bedside presence in the pediatric intensive care unit. Frontiers in Pediatrics, 11. https://doi.org/10.3389/fped.2023.1308682

Punthmatharith, B., Buddharat, U. in Kamlangdee, T. (2007). Comparisons of needs, need responses, and need response satisfaction of mothers of infants in neonatal intensive care units. Journal of Pediatric Nursing, 22(6), 498–506. https://doi.org/10.1016/j.pedn.2006.05.015

R Core Team. (2023). R: A language and environment for statistical computing. R Foundation for Statistical Computing. https://www.R-project.org/

Revelle, W. (2023). psych: Procedures for psychological, psychometric, and personality research. Northwestern University. https://CRAN.R-project.org/package=psych

Rosseel, Y. (2012). lavaan: An R package for structural equation modeling. Journal of Statistical Software, 48(2), 1–36. https://doi.org/10.18637/jss.v048.i02

Sargent, A. N. (2009). Predictors of needs in mothers with infants in the neonatal intensive care unit. Journal of Reproductive and Infant Psychology, 27(2), 195–205. https://doi.org/10.1080/02646830802350849

Signorell, A. (2023). DescTools: Tools for descriptive statistics. https://cran.r-project.org/package=DescTools

Stekhoven, D. J. in Buehlmann, P. (2012). MissForest – Nonparametric missing value imputation for mixed-type data. Bioinformatics, 28(1), 112–118. https://doi.org/10.1093/bioinformatics/btr597

Toral-Lopez, I., Fernandez-Alcantara, M., Gonzalez-Carrion, P., Cruz-Quintana, F., Rivas- Campos, A. in Perez- Marfil, N. (2016). Needs perceived by parents of preterm infants: Integrating care into the early discharge process. Journal of Pediatric Nursing, 31(2), 99–108. https://doi.org/10.1016/j.pedn.2015.09.007

Vaškelytė, A., Butkevičienė, R. in Klemmac, D. (2009). Neišnešiotų naujagimių, gydomų Naujagimių intensyvios terapijos skyriuje, tėvų poreikiai [Assessing needs of families with premature newborns in the Neonatal Intensive Care Unit]. Medicina, 45(4), 320–326.

Venables, W. N. in Ripley, B. D. (2002). Modern applied statistics with S (4. izd.). Springer. https://doi.org/10.1007/978-0-387-21706-2

Walker, J., Pepa, C. in Gerard, P. S. (2010) Assessing the health literacy levels of patients using selected hospital services. Clinical Nurse Specialist CNS, 24(1), 31–37. https://doi.org/10.1097/NUR.0b013e3181c4abd0

Wang, L., He, J. L. in Fei, S. L. (2018). Perceived needs of parents of premature infants in NICU. Western Journal of Nursing Research, 40(5), 688–700. https://doi.org/10.1177/0193945916683679

Ward, K. (2001). Perceived needs of parents of critically ill infants in a neonatal intensive care unit (NICU). Pediatric Nursing, 27(3), 281–286.

Whittingham, K., Boyd, R. N., Sanders, M. R. in Colditz, P. (2014). Parenting and prematurity: Understanding parent experience and preferences for support. Journal of Child and Family Studies, 23, 1050–1061. https://doi.org/10.1007/s10826-013-9762-x

Wigert, H., Berg, M. in Hellström, A.-L. (2010). Parental presence when their child is in neonatal intensive care. Scandinavian Journal of Caring Sciences, 24(1), 139– 146. https://doi.org/10.1111/j.1471-6712.2009.00697.x

Wright, R. C. in Mueller, C. (2020). Parental understanding of surgical care in the neonatal intensive care unit. Journal of Surgical Research, 255, 118–123. https://doi.org/10.1016/j. jss.2020.05.046

Prenosi

Objavljeno

29.12.2025

Številka

Rubrika

Razvojnopsihološke teme v prepletu medosebnih odnosov in družbenih kontekstov

Kako citirati

Petrovec, Živa M., Fekonja, U., Paro Panjan, D., & Kodrič, J. (2025). Potrebe staršev novorojenčkov, ki potrebujejo bolnišnično zdravljenje: Primerjava perspektive staršev in zdravstvenega osebja. Psihološka Obzorja, 34(1), 124-135. https://doi.org/10.20419/2025.34.622

Najbolj brani prispevki istega avtorja(jev)

1 2 > >>